Research Studies
AANE maintains this listing of current research for the community’s information and possible participation.
Please note: These research studies are external and are not run by nor affiliated with AANE.
Contact AANE
Schedule a call to speak with a member of AANE’s staff, or fill out a form to be contacted by email.
Guidelines for Research Study Submission
- Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
- Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
- Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
- Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.
Researchers are invited to submit or make updates to a previously submitted study by using the button below.
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Autistic Adults’ Perspectives in Sexuality and Relationship Education Experiences
Researchers at Tufts University are recruiting autistic adults to develop a measure to understand the cultural aspects of sexuality and relationship education (SRE) received by autistic population in the U.S. Participants will be invited to fill out an online survey, then take part in a Zoom interview lasting about 45-60 minutes. Participants will be compensated […]
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Genetic Testing in the Prenatal and Cancer Settings: The Autistic Adult Perspective
This study aims to assess the perspectives of adults with autism on genetic testing in the prenatal and cancer settings. Current knowledge fails to address the autistic perspective regarding prenatal and cancer genetic testing. Prenatal genetic testing includes carrier screening, cell-free DNA screening, and diagnostic genetic testing. These tests are recommended to be offered to […]
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Sex Differences in the Diagnosis of Autism Spectrum Disorder
We are conducting a research study on the effectiveness of screening tools in detecting autism spectrum disorders in children of both sexes. We are seeking parents or caregivers of children between the ages of five and eleven whose children have received a formal ADOS score. Participation will take no more than 10 minutes and will […]
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Establishing expert opinion to reach a consensus on how to best define and investigate developmental regression in children
The study aims to gather information from parents and caregivers with lived experience and clinicians to achieve a consensus for definitions, assessments and investigations for children presenting with developmental regression. Developmental regression describes the loss of already acquired skills and can be seen in a small number of conditions (including autism, Rett syndrome, and Landau-Kleffner […]
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Understanding and Minimizing Reporting Discrepancy of Anxiety Symptoms in Children with Autism Spectrum Disorder
The current study aims to investigate the perceptions of emotional functioning of children with ASD and factors that may influence those perceptions. This research has been approved by the Washington State University Institutional Review Board. I am inviting caregivers and their children to participate. You and your child may participate in the study if your […]
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Neighborhood Vitality Index
All Detroit residents 18 and older are eligible, and after they complete the survey we will send them a $25 gift card:* Email : jfmcg@jfmconsulting.net
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Diagnostic Experiences of low-support needs Autistic Adults
Facial Expressions Study The specific aim of the current study is to gain a deeper understanding of the diagnostic journeys experienced by low-support needs Autistic adults. The specific objectives of the current study are; • Explore how low-support needs autistic adults make sense of receiving a clinical diagnosis• Explore how low-support needs autistic adults navigate […]
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Identification of Biomarkers in Autism Spectrum Disorder (ASD) using Protein and Metabolite Profiling
The purpose of this study is to identify biomarkers of ASD that correlate with behavioral and developmental phenotypes in order to develop and test biomarker profiles that form a diagnostics tool; screen and identify children with ASD who might benefit from specific interventions; develop and test biomarker profiles that inform an instrument for monitoring therapeutic […]
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Diversity Project
I would like to introduce an online study which is being conducted by Dr. Erin Kang and doctoral candidate Sadaf Khawar, MA, BCBA at the Montclair State University’s Psychology Department in Montclair, NJ. The Montclair State University Institutional Review Board has approved this study [IRB-FY21-22-2334]. Please see our flyer with this email. Prior research studies […]
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SPARK for Autism Facial Expressions Study
SPARK will be the largest autism study in US history and the goal is to speed up research to better understand causes and treatments for ASD. There is no cost to join SPARK and participation can be completed entirely online and from home. You will also receive a $50 Amazon gift card for your family’s […]
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