Research Studies

AANE maintains this listing of current research for the community’s information and possible participation.

Please note: These research studies are external and are not run by nor affiliated with AANE.

Contact AANE

Schedule a call to speak with a member of AANE’s staff, or fill out a form to be contacted by email.

Guidelines for Research Study Submission

  • Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
  • Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
  • Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
  • Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.

Researchers are invited to submit or make updates to a previously submitted study by using the button below.

  • Ethics of XR for Neurodivergent Children Focus Group Study

    Are you a parent, educator, clinician, or therapist of kids ages 8-13 with a diagnosis of autism and/or ADHD in the Greater Boston area? We are researchers at Northeastern University studying the ethics of XR (extended reality) technologies (like VR headsets and PokémonGo) for neurodivergent children who need your help! Participate in a one-time 90-minute […]

  • Help Us Design A NY-Area Neurodivergent Day Camp!

    Help Us Design A NY-Area Neurodivergent Day Camp! The directors of Camp Akeela and Elmwood Day Camp are exploring the possibility of starting a new day camp for neurodivergent youth in the New York City and Westchester County area. Before taking the next steps, we want to listen carefully to input from the real experts: […]

  • Preparing for Extremely Hot or Cold Weather

    Extremely hot or cold weather can be a hazard to health, especially without proper planning. Watertown is among communities whose health departments are preparing to keep community members safe and healthy during these extreme temperature events. A one-hour meeting is being planned to learn the best strategies to support those with Autism and Neurodiversity. This […]

  • Serendipitous drug repurposing through social media

    The purpose of this research study is to see if we can use social media to survey people worldwide in order to discover unexpected beneficial effects of drugs, nutraceuticals or herbal medicines. We are hoping you can help us by answering a very short survey with the goal of finding better safer drugs for both […]

  • Adolescent Sibling Sleep Study

    Help reveal what improves sleep for teens with Autistic siblings by participating in our online questionnaire study! We are looking for parent-adolescent pairs who have a child/sibling with Autism and live in the US to help us gain a better understanding of the sleep and sleep hygiene of adolescents who have a sibling with Autism. […]

  • STEPS: The Stepped Transition to Employment and Postsecondary Education Success

    We are testing the impact of a new transition support program for teenagers and young adults with autism spectrum disorder (ASD). The Stepped Transition to Employment and Postsecondary Education Success (STEPS) program is a one-on-one counseling program designed to support transition to growing independence among autistic adolescents and young adults. Individuals who are eligible would […]

  • Grief and Bereavement Experiences of Children with Intellectual Disabilities

    We are conducting a study to understand more about how children with intellectual disabilities grieve after the loss of someone in their life. If your child has experienced such a loss, we invite you to participate in this study to help us learn how to support other children in similar situations. Participants will be interviewed […]

  • Resilience and factors promoting positive outcomes in neurodivergence

    Who are we? We are researchers based in Stockholm at the Karolinska Institutet Center for Neurodevelopmental Disorders (KIND). What is the study about? We are currently conducting research that seeks to capture individual (factors specific to a person and their ways of being), activity and participation (the things an individual engages in like education or […]

  • Designing a Brain Training Game for Learning, Health Literacies, and Self-Formation Using A Neurodiversity Design Approach to Learning Experience Design

    Call for Research Participants Study Title: Designing a Brain Training Game for Learning, Health Literacies, and Self-Formation Using A Neurodiversity Design Approach to Learning Experience Design Investigator: Jamie Bernhardt We invite you to take part in a research study through Georgia State University. The purpose of this study is for the researcher to make a […]

  • PET-MRI brain imaging in autism spectrum disorder

    The Massachusetts General Hospital (MGH) is currently recruiting for a new research study that will use a positron emission tomography (PET)-magnetic resonance imaging (MRI) scanner to examine the brains of adults with autism spectrum disorder. The study includes at least 2 visits: one screening visit at the MGH Lurie Center and one scanning visit at […]

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