Research Studies
AANE maintains this listing of current research for the community’s information and possible participation.
Please note:
- These research studies are external and are not run by nor affiliated with AANE.
- AANE is committed to identity-first language and non-medical language and approach but the research studies posted may not follow the same practices.
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Guidelines for Research Study Submission
- Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
- Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
- Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
- Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.
Researchers are invited to submit or make updates to a previously submitted study by using the button below.
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Gender and Autistic Identity and Their Relation to Masking
Hello! My name is Connor Thornton and I am a clinical psychology doctoral student at Northern Arizona University (NAU) working under Dr. Lisa Elder Outhier. I am working on a doctoral thesis (IRB Approval 2282294-2). The aim of this research is to explore the relationship between gender identity and masking within the autistic community and […]
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Understanding the Strengths and Needs of Non-Autistic Siblings of Autistic Individuals
Hi! My name is Clara Thörn, and I’m a doctoral candidate in the School Psychology program at UNC-Chapel Hill. I’m conducting a research study (IRB #25-0267) focused on better understanding the experiences of non-autistic siblings of individuals with autism. This study aims to gather expert insights from siblings, parents, and professionals to help identify strengths […]
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Disentangling the adult diagnosis of autism and behavioural phenotype of assigned female at birth individuals
This study aims to explore the gender differences in the presentation of autism and the barriers which prevent individuals from receiving an autism diagnosis in early childhood. Existing research has identified the benefits of an early autism diagnosis such as improved quality of life because of better access to services/supports and more positive self-identities. Generally, […]
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A Comparative Study of Alexithymia, Interoceptive Awareness and Executive Functioning in Individuals with Autism and Neurotypicals
I hope this message finds you well. My name is Sai Srusti Mishra, and I am currently pursuing my Master’s in Psychology at Ravenshaw University, India. As part of my academic requirements, I am working on my dissertation titled “A Comparative Study of Alexithymia, Interoceptive Awareness and Executive Functioning in Individuals with Autism and Neurotypicals.” […]
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Workplace Inclusion for Autistic Human Services Workers
This study seeks to understand the barriers and facilitators of workplace inclusion and wellbeing for autistic human services workers in Canada and the United States. It is the first large-scale study to examine these topics, thus the results will offer new knowledge and most importantly inform efforts to promote the inclusion of autistic human services […]
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Autistic Identity Development
Hello, my name is Andrea Fanta, and I am a PhD candidate in the Department of Human Development and Family Studies (HDFS) at the University of Illinois. I am currently embarking on a research project focused on autistic identity development. My goal is to understand the practices parents use to support autistic identity during middle […]
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Patient Supported Approaches to Gene Editing (PaSAGE) Study
We are conducting an NIH-funded study to elicit the views, ethical concerns, and clinical aspirations of key stakeholder groups on prenatal gene editing technologies. Though prenatal gene editing is not currently being done in humans, it is possible that it will be available in the future, at least in a research setting. We, as a […]
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Hiding in Plain Sight: Exploring Environmental Factors of Camouflage and Autism Diagnosis
Recent research suggests that some autistic individuals may never be diagnosed with the condition. This study aims to identify how environmental factors contribute to developing camouflaging behaviors and potential delays in autism diagnoses. We seek to include diverse perspectives, particularly from those traditionally overlooked or excluded, such as women and gender-nonconforming individuals. Name of Organization: […]
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Autism and Weight Communications Study
Looking for autistic young adults to participate in a study to understand their experiences with negative comments or different treatment because of having a larger body size. Participants must be between 18 and 25 years old, have a clinical diagnosis of autism, and be willing to complete an online survey and participate in an online […]
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Ready to Connect
The FACE Lab at Emerson College is launching a new virtual study in partnership with the University of Connecticut and the Children’s Hospital of Philadelphia. We are excited to tell you about a study focused on conversations in autistic and non-autistic children ages 12-15 years and their families. If you are eligible to participate in […]
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