Research Studies

AANE maintains this listing of current research for the community’s information and possible participation.

Please note: These research studies are external and are not run by nor affiliated with AANE.

Contact AANE

Schedule a call to speak with a member of AANE’s staff, or fill out a form to be contacted by email.

Guidelines for Research Study Submission

  • Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
  • Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
  • Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
  • Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.

Researchers are invited to submit or make updates to a previously submitted study by using the button below.

  • Establishing expert opinion to reach a consensus on how to best define and investigate developmental regression in children

    The study aims to gather information from parents and caregivers with lived experience and clinicians to achieve a consensus for definitions, assessments and investigations for children presenting with developmental regression. Developmental regression describes the loss of already acquired skills and can be seen in a small number of conditions (including autism, Rett syndrome, and Landau-Kleffner […]

  • Understanding and Minimizing Reporting Discrepancy of Anxiety Symptoms in Children with Autism Spectrum Disorder

    The current study aims to investigate the perceptions of emotional functioning of children with ASD and factors that may influence those perceptions. This research has been approved by the Washington State University Institutional Review Board. I am inviting caregivers and their children to participate. You and your child may participate in the study if your […]

  • Journey to Adulthood Diagnosis: A Qualitative Study Regarding Healthcare Experiences of Autistic Adults Assigned Female at Birth (AFAB)

    Hello! My name is Gabrielle Agnew. I am an autistic doctoral candidate in clinical psychology at UT Southwestern Medical Center in Dallas, TX. You are invited to complete a study about your adulthood autism diagnosis (self-diagnosis or diagnosis by healthcare provider) and healthcare experiences. By completing the study, you will have a chance to share […]

  • Neighborhood Vitality Index

    All Detroit residents 18 and older are eligible, and after they complete the survey we will send them a $25 gift card:* Email :

  • Diagnostic Experiences of low-support needs Autistic Adults

    Facial Expressions Study The specific aim of the current study is to gain a deeper understanding of the diagnostic journeys experienced by low-support needs Autistic adults. The specific objectives of the current study are; • Explore how low-support needs autistic adults make sense of receiving a clinical diagnosis• Explore how low-support needs autistic adults navigate […]

  • Identification of Biomarkers in Autism Spectrum Disorder (ASD) using Protein and Metabolite Profiling

    The purpose of this study is to identify biomarkers of ASD that correlate with behavioral and developmental phenotypes in order to develop and test biomarker profiles that form a diagnostics tool; screen and identify children with ASD who might benefit from specific interventions; develop and test biomarker profiles that inform an instrument for monitoring therapeutic […]

  • Diversity Project

    I would like to introduce an online study which is being conducted by Dr. Erin Kang and doctoral candidate Sadaf Khawar, MA, BCBA at the Montclair State University’s Psychology Department in Montclair, NJ. The Montclair State University Institutional Review Board has approved this study [IRB-FY21-22-2334]. Please see our flyer with this email. Prior research studies […]

  • SPARK for Autism Facial Expressions Study

    SPARK will be the largest autism study in US history and the goal is to speed up research to better understand causes and treatments for ASD. There is no cost to join SPARK and participation can be completed entirely online and from home. You will also receive a $50 Amazon gift card for your family’s […]

  • Cancer Screening for Patients With Intellectual Disability: Exploring Parent and Caregiver Perspectives

    Our goal is to understand the experiences of patients with intellectual disability in regard to screening for cancer, for example colonoscopies for colon cancer and mammograms for breast cancer. For patients not being screened, we hope to learn about any barriers faced. We want to provide parents and caregivers the opportunity to share their thoughts […]

  • Speech-Language Pathologists’ perspectives on assessment and intervention methods of speech sound disorders in children with autism

    To the attention of SLPs, My name is Shams Verdiyeva and I am a MS student in Language and Communication Impairments in Children at the University of Sheffield. For my MS dissertation research project, I am conducting a survey among SLPs working in the United States. Through my research project, I hope to learn more […]

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