Research Studies
AANE maintains this listing of current research for the community’s information and possible participation.
Please note:
- These research studies are external and are not run by nor affiliated with AANE.
- AANE is committed to identity-first language and non-medical language and approach but the research studies posted may not follow the same practices.
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Guidelines for Research Study Submission
- Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
- Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
- Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
- Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.
Researchers are invited to submit or make updates to a previously submitted study by using the button below.
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South Carolina In Home Infant Study
My name is Megan Streetman, and I’m the Recruitment & Outreach Coordinator for the Early Social Development Lab at the University of South Carolina. Our lab is dedicated to research on the early identification of autism spectrum disorders (ASD) in infants — work that aims to support earlier intervention and better long-term outcomes for children […]
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Autism Across Generations: Study 2
About the study: We are conducting an interview-based study to better understand autistic adolescents’ experiences living with an autistic parent. Our goal is to better understand their perspectives and the dynamics of families with a shared autistic identity. Eligibility: Teens must: 1) be 13 to 18 years old with a formal autism diagnosis, 2) be […]
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Autism Across Generations: Study 1
About the study: We are conducting a survey-based study to better understand how having an autistic parent may affect autistic adolescents’ mental health and masking. By understanding these relationships, our goal is to help inform how we support autistic adolescents and their families. Eligibility: A parent and an autistic teen are needed to participate in […]
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Listening to Neurodiverse Parent Voices: Understanding Treatment Acceptability in Autism Care
Parents of Autistic Children: We Want to Hear From You! Hello! We are doing an IRB-approved online research study to learn how parents of autistic children feel about common autism therapies. Who can join? Parents or caregivers of children ages 4–11 with a formal autism diagnosis. What will you do? Fill out short surveys about […]
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Community Participation in Autistic Young Adults
What is the study about? We are studying how autistic young adults do community activities, such as social and recreation, leisure, religious and/or volunteering activities. We also want to learn autistic young adults’ thoughts on how community activities relate to their well-being. Who can participate? Autistic young adults who are 18-30 years old and live […]
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Artistic Nonverbal Self-Expression in Autistic Women
This IRB-approved research study explores how artistic self-expression—through dance, music, or visual arts—supports emotional well-being among Autistic women. This study aims to center the voices and perspectives of Autistic women; the goal is to publish their thoughts and feelings about how the arts serve as a source of self-expression and mental well being. I’m currently […]
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TUNE In: Training to Understand and Navigate Emotions and Interactions
WHAT IS TUNE IN? – TUNE In is a social skills program for autistic adults. – TUNE In is rooted in cognitive-behavioral therapy (involving greater understanding of your own thoughts, feelings, and behaviors) and mindfulness-based practices (involving greater awareness of yourself and others). – The TUNE In curriculum covers skills such as remaining relaxed and […]
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Stories of the Experiences of Black Fathers Raising Children with Autism: A Narrative Inquiry
If you meet the following criteria, I would love to hear your story: – A Southern United States resident – A Black father 18 or older – A cisgender (gender-typical) male – An English-speaking male – Raising (or have raised) a child with autism, ages 2-18 years – The primary caregiver or significantly involved in […]
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Neurotypical Siblings of Autistic Individuals: Emerging Adult Perspectives
This research aims to explore the perspectives of neurotypical emerging adults who have a biological sibling with a formal autism diagnosis. The study focuses on childhood experiences, family dynamics, and the sibling relationship. To participate, you must meet all of the following criteria: – Age 18–25 years– Not diagnosed with autism– Have a biological sibling […]
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Are you an autistic teen? Share your perspective!
What’s the study about? We are interested in your perspective! The Clinical Neuroscience Laboratory at Case Western Reserve University is enrolling individuals ages 13-17 in a study interested in the emotions and experiences of autistic individuals and learning more about their thoughts, feelings, and experiences. Who can participate? Autistic Teens (13-17) What will participants be […]
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