Research Studies
AANE maintains this listing of current research for the community’s information and possible participation.
Please note:
- These research studies are external and are not run by nor affiliated with AANE.
- AANE is committed to identity-first language and non-medical language and approach but the research studies posted may not follow the same practices.
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Guidelines for Research Study Submission
- Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
- Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
- Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
- Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.
Researchers are invited to submit or make updates to a previously submitted study by using the button below.
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Measuring Primary Caregiver-Child Interaction
We invite children aged 3 to 8 years old and one of their main caregivers to join our research study. Children with and without Autism Spectrum Disorder are welcome to participate. In this study, we want to try a new method for understanding how parents and children interact. We will do this by watching and […]
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Discrimination, Support and the Well-being of Autistic Adults in South Africa
The aim of this study is to examine the relationship between discrimination, support and the well-being of autistic adults in South Africa. Participants will take an online survey about their personal experiences of discrimination, their support systems, and their well-being. It should take about 20 minutes to complete. They also have the option to participate […]
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Understanding Women’s Autistic Identities: Enhancing Wellbeing Through Self-Reflection
Who am I and what is this study about? My name is María Paula Silva and I am an MSc student of Human-Computer Interaction at University College Dublin. This study seeks to explore the experiences of autistic women, with the purpose of understanding how technology can be used for building positive autistic identities and improve […]
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Focus Group Study on Personal Interfaces
We are building personal wearable sensor interfaces specifically for people on the autism spectrum. In this study, you will get to look at several examples of these personal interfaces and discuss them anonymously with a few others. You’ll also have the chance to suggest how you might design one for yourself. If you are interested, […]
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Sex Differences in the Diagnosis of Autism Spectrum Disorder
We are doing this study to evaluate the effectiveness of screening tools at identifying autism spectrum disorder in children. Name of Organization: Texas Christian University For questions, please email:: [email protected] Study Link: https://tcu.co1.qualtrics.com/jfe/form/SV_3fQ9C98s3WvzeMS
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Neurodiversity and Leadership: Perspectives of Autistic Leaders and their Employees
We are recruiting individuals who are (i) officially diagnosed with level one autism, and (ii) are currently working in a leadership role (supervisor, manager, leader). We are interested in learning about your experiences and preferences as a leader. Participation is voluntary and all responses will be completely confidential. For the results of this study to […]
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Caregiver-Endorsed Intervention Strategies for the Treatment of Sensory Reactivity Symptoms in Children with Neurodevelopmental Disorders
This anonymous 5-10 minute survey will include questions regarding: Your child’s basic demographic information Your child’s sensory preferences (e.g., hyperreactivity, hyporeactivity, sensation seeking) Your satisfaction with various sensory interventions your child has received You may be eligible to take part in this research study, if you: Are a caregiver of a […]
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Community-based participatory research to adapt and psychometrically test instrumentation for use in a multifaceted employment intervention
This project uses what we learned in our autism and skilled employment pilot study about what successful employment meant to autistic people. The goal is to adapt and test surveys that measure the things people said meant successful employment to them. The measures can then be used to evaluate employment services or workplace settings. It […]
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Perspectives and Experiences of Arab Caregivers of Nonvocal Children with ASD and IDD Who Engage in Challenging Behavior
This study aims to explore the perspectives and experiences of caregivers from Arab backgrounds, living in the US, of children with autism spectrum disorder (ASD) and intellectual and developmental disabilities (IDD) who are minimally vocal/nonvocal and engage in challenging behavior in terms of coaching/training and the implementation of interventions such as applied behavior analysis (ABA). […]
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Robots for Smalltalk Training
We have developed a robot to provide efficient and relevant training to improve users’ small talk skills. Participation in this study will involve briefly chatting with a social robot in your home and providing feedback on the interactions. Participants will be paid $15 per day of in-person participation, up to 7 days for a total […]
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