This study is led by Principal Investigator Professor Toby M. Long (Georgetown University) and conducted by Serena Pessolano, Visiting Scholar (Sponsored University Associate). It invites parents or primary caregivers (18 years or older) of children with complex communication needs to participate in an anonymous online survey.

I am a Visiting Scholar at Georgetown University (Fulbright Research Scholar) conducting a research study titled:

“Symbols for all – Use of Augmentative and Alternative Communication (AAC) in Children with Complex Communication Needs. International Caregiver Survey.”

The study explores communication experiences of children with complex communication needs and the use of Augmentative and Alternative Communication (AAC).

Participation is anonymous and the survey takes approximately 15–20 minutes.

The optional follow-up interview is not anonymous but will remain confidential.
If participants choose to be contacted for a 20–30 minute follow-up interview, their email will be collected through a separate form, will not be linked to their survey responses, and will be deleted after the interview is completed or if they decide not to participate.

Thank you for supporting research that aims to improve communication accessibility for children and families.

Name of Organization:
Georgetown University, Thrive Center for Children, Families, and Communities

For questions, please email::
[email protected] [email protected]

Study Link: 
https://georgetown.az1.qualtrics.com/jfe/form/SV_2fXsyFuM0f3UJ5s