Policies for Reproductive Outcomes in Medicaid–Improving Services for Enrollees with Intellectual and Developmental Disabilities (PROMISE-IDD)

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Date Posted

Research Study Description

PROMISE IDD combines a national pregnancy dataset with interviews of people with IDD who used Medicaid during pregnancy. Our goal is to identify the best healthcare practices and policies that can reduce pregnancy-related health problems in Medicaid-enrolled women with IDD.

We want to hear about your pregnancy experience for our research study.

We are looking for people with intellectual and developmental disabilities to participate in an hour-long online interview about their experiences during pregnancy. Participants will receive a $50 Visa reward gift card for their time.

You may be eligible if you:

– Speak English
– Have a documented IDD diagnosis
– Are currently pregnant
– Were pregnant in the last 10 years
– Used Medicaid during pregnancy
– Lived in the United States during pregnancy
– Are 18 years of age or older

Examples of IDD diagnosis can include various conditions, such as:

– Non-intellectual disability conditions, like autism or cerebral palsy
– Fragile X syndrome
– Language or learning disorders

Study Information:

http://sites.bu.edu/rubenstein/promise-idd/

Name of Organization:
Rubenstein Lab at Boston University School of Public Health

For questions, please email:
[email protected]

Study Link: 

https://redcap.bumc.bu.edu/surveys/?s=4NWJ9LMH374MFK9R