This online, survey study is about understanding the experiences of parents and caregivers raising adolescents with intellectual and developmental disabilities (IDDs), including autism, during the transition from adolescence to adulthood. Researchers are interested in learning more about patience, stress, support, well-being, and parent-child relationships over time, as families navigate educational, healthcare, community, and future planning systems.

Parent participants will complete an online survey about their experiences raising an adolescent with autism. The survey will include questions about patience, stress, well-being, support systems, parent-child relationships, and experiences navigating services and supports during adolescence and the transition to adulthood. The online survey will take approximately 45 minutes to complete and will be completed once per year for four years.

Findings from this study may help researchers and professionals better understand the factors that support caregiver well-being and healthy family relationships and may inform future supports and resources for families of adolescents with autism and other IDDs.

Name of Organization:
Baylor Center for Disability & Flourishing

For questions, please email::
[email protected]

Study Link: 
https://disability.research.baylor.edu/patience