Autism Across Generations: Study 1

AANE maintains this listing of current research for the community’s information and possible participation. These research studies are external and are not ran by, nor affiliated with, AANE. To return to the main research study page that includes the full listing of research studies, study guidelines, and a link to submit a research study, click this link.

Date Posted

Research Study Description

About the study: We are conducting a survey-based study to better understand how having an autistic parent may affect autistic adolescents’ mental health and masking. By understanding these relationships, our goal is to help inform how we support autistic adolescents and their families.

Eligibility: A parent and an autistic teen are needed to participate in the study.
Teen: 1) Must be 13 to 18 years old, 2) Must have a formal autism diagnosis, 3) Must live in Canada or the USA, and 4) Must not have a history of intellectual disability.
Parent: 1) Can participate whether they are autistic or not, and 2) Must live with the teen a minimum of 3 days per week in Canada or the USA.

What is involved: The parent will complete a 10-minute online survey while the teen will complete a 15-20-minute online survey.
Prior to completing the surveys, both the parent and adolescent participants will need to schedule a brief 5-minute Zoom video call to verify their identities and review consent and assent forms.

Participating families will be entered to win one of 10 $50CAD e-gift cards (Starbucks, Amazon, or Uber) to thank you for your time.

Name of Organization:
The University of British Columbia

For questions, please email::
[email protected]

Study Link: 
https://ubc.ca1.qualtrics.com/jfe/form/SV_4V20HTRZw8HJTfM