Research Studies
AANE maintains this listing of current research for the community’s information and possible participation.
Please note:
- These research studies are external and are not run by nor affiliated with AANE.
- AANE is committed to identity-first language and non-medical language and approach but the research studies posted may not follow the same practices.
Contact AANE
Schedule a call to speak with a member of AANE’s staff, or fill out a form to be contacted by email.
Guidelines for Research Study Submission
- Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
- Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
- Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
- Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.
Researchers are invited to submit or make updates to a previously submitted study by using the button below.
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Beyond the binary: An exploration of barriers to autism diagnosis among gender minority individuals
The purpose of this study is to explore diagnostic experiences of autistic gender minority people (e.g., people who identify as transgender, nonbinary, gender diverse, or another label). We are conducting this study because we are interested in hearing about challenges during the autism assessment process for transgender and gender diverse people, as well as aspects […]
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Intersectional Labels to Describe Autistic Sexual Orientation and Gender Identity
Hello, I am reaching out as part of the Double Rainbow Lab at the University of Calgary (see more information about our lab here: https://double-rainbow-lab.dudasites.com/). We conduct research focused on LGBTQ+ and autistic mental health and well-being, with an emphasis on strengths-based and affirmative practice. We are currently recruiting participants for a study focused on […]
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Do you have Autism or Asperger’s Syndrome?
We are looking for volunteers with a diagnosis of Autism or Asperger’s Syndrome who are interested in participating in our research studies in the Adolphs Lab at Caltech in Pasadena. We are currently looking for volunteers for behavioral and MRI scanning experiments. This is a paid study, with compensation starting at $50/hour, with some […]
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Looking Study (Eye Tracking)
Looking for: Children ages 8-12 with a diagnosis of autism, ADHD, autism and ADHD, or without a diagnosis of either, plus one parent/caregiver. What you would do: Attend a one-time study visit at the lab for about 60-90 minutes. During this visit, the child will view a series of images and videos on a computer […]
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Understanding Autistic Adults’ Conceptualizations and Experiences of Masking Within the Neurodiversity Paradigm
Hello, my name is Jeremy Brown, and I am a licensed clinical social worker and a PhD candidate at the School of Social Work at Simmons University in Boston, Massachusetts. I invite you to participate in the research study I am conducting for my dissertation to learn more about the experiences of adults who hide […]
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Driving with autism spectrum disorders
Researchers at the Schepens Eye Research Institute, Boston, MA are currently conducting a voluntary research study. The purpose of the study is to learn more about how autism spectrum disorders affect driving, in particular responses to potential hazards. Individuals must meet the following requirements for participation: o Have an autism spectrum disorder (ASD) o 18 […]
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Autistic Adults’ Perspectives in Sexuality and Relationship Education Experiences
Researchers at Tufts University are recruiting autistic adults to develop a measure to understand the cultural aspects of sexuality and relationship education (SRE) received by autistic population in the U.S. Participants will be invited to fill out an online survey, then take part in a Zoom interview lasting about 45-60 minutes. Participants will be compensated […]
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Genetic Testing in the Prenatal and Cancer Settings: The Autistic Adult Perspective
This study aims to assess the perspectives of adults with autism on genetic testing in the prenatal and cancer settings. Current knowledge fails to address the autistic perspective regarding prenatal and cancer genetic testing. Prenatal genetic testing includes carrier screening, cell-free DNA screening, and diagnostic genetic testing. These tests are recommended to be offered to […]
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Sex Differences in the Diagnosis of Autism Spectrum Disorder
We are conducting a research study on the effectiveness of screening tools in detecting autism spectrum disorders in children of both sexes. We are seeking parents or caregivers of children between the ages of five and eleven whose children have received a formal ADOS score. Participation will take no more than 10 minutes and will […]
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Establishing expert opinion to reach a consensus on how to best define and investigate developmental regression in children
The study aims to gather information from parents and caregivers with lived experience and clinicians to achieve a consensus for definitions, assessments and investigations for children presenting with developmental regression. Developmental regression describes the loss of already acquired skills and can be seen in a small number of conditions (including autism, Rett syndrome, and Landau-Kleffner […]
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