Establishing expert opinion to reach a consensus on how to best define and investigate developmental regression in children

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Date Posted

Research Study Description

The study aims to gather information from parents and caregivers with lived experience and clinicians to achieve a consensus for definitions, assessments and investigations for children presenting with developmental regression.

Developmental regression describes the loss of already acquired skills and can be seen in a small number of conditions (including autism, Rett syndrome, and Landau-Kleffner syndrome) and is most commonly associated with autism.

Your participation will ensure a patient and family-centred approach to clinical practice in this field and/or expert clinical perspectives. The way you answer each question will tailor the questions that follow so they are suited to your experience.

Specifically, we would like your opinion on this and one to two more surveys sent via email using Qualtrics. Each survey should take up to 20 minutes to complete.

Thank you for considering participation. Please click on the link below to view our participant information sheet and, if you wish, commence the first survey.